Hydrocephalus in Adults

Hydrocephalus in Adults

About the Hydrocephalus Registry

The cause of hydrocephalus is a disturbance in the circulation of the cerebrospinal fluid and a widening of the ventricles of the brain. Hydrocephalus can affect both children and adults. The disease leads to gait and balance difficulties, mental decline and incontinence, in adults. An estimated up to 2% of all individuals above 65 years of age are suffering from hydrocephalus.

Hydrocephalus can be treated through neurological surgery, most commonly with a shunt, diverting the cerebrospinal fluid from the ventricles of the brain to the peritoneal space or to the right atrium of the heart, via a silicon tube. The results after treatment are good, showing a significant reduction of symptoms as well as improved quality of life in 50-80% of the patients.

Hydrocephalus appears more frequently in adults, than what is generally known. The purpose of the registry is to reach a common national picture of the condition focusing on investigation, treatment and follow up regarding the outcome and the presence of complications. In this way, the care for the individual patient can improve through the development of scientifically grounded care programs, leading to a safer and more effective care of the patient.


Specific purposes of the registry

  • To gather information regarding adults with hydrocephalus, living in Sweden
  • To evaluate the outcome of treatment and achieved level of quality of life
  • To follow the presence of complications after surgical treatment
  • To contribute to a high qualitative and equal care of patients with hydrocefalus in Sweden
  • To contribute to better control of quality and follow up at a clinical level and to the performance of research, improvement and development within the field